Resources for Parents

 
Park City Resources

National Ability Center The National Ability Center empowers individuals of all abilities by building self-esteem, confidence and lifetime skills through sport, recreation and educational programs.

Lucky Ones Coffee – We are a coffee shop that employs and empowers individuals with disabilities! We want to change the way people see other people. This truly is a coffee ‘home’ it is a place for everyone.

Park City ALL – Providing  lifelong learning and  day support for young adults with disabilities by offering community based programming, utilizing local resources and connecting participants to the community.

Young Life Capernaum – Young Life Capernaum gives young people with intellectual and developmental disabilities the chance to experience fun and adventure, to develop fulfilling friendships and to challenge their limits while building self-esteem through club, camp and other exciting activities. Young Life leaders have the privilege of knowing and sharing their lives with teenagers and young adults with disabilities.

Utah Resources

The Hub of Opportunity A Pioneering Effort of Economic Sustainability for Individuals with Disabilities in SLC.

Camp Kostopulos Camp K’s mission is dedicated to improving the quality of life for people with disabilities through recreation, education, and growth experiences. Our services are available to people of all abilities, levels of income, and place of residence. Our year-round programs are evidence-based, and designed by recreational therapists to foster independence by increasing self-esteem, confidence, physical fitness, communication skills, relationships, and other life and social skills.

Aggies Elevated A federally designated Comprehensive Transition Program (CTP) at Utah State University that offers a two-year certificate in Integrated College and Community Studies for young adults with intellectual disabilities. The certificate and curriculum have been approved by the Utah Board of Regents and Utah State University as a vocational program.

School to Post-School Transition Links to many helpful sites. Also listed below.                                                                                               

Utah State Board of Education (USBE) Special Education Rules Search for links you need, Transition from High School, Post Secondary planning etc. This is an exciting time! Think about your future, and to start questioning: “What do I enjoy doing? Do I want to go to college? What are my options?                                                                                                                                 

USBE summary of research/ transition assessments  Transition planning assessment for secondary‐level students with learning … students achieve a successful transition from high school.                                                                                                                     

A College and Career Readiness Framework for Secondary This call for action once again directs attention to the concept of transition– focused education and the goal of preparing students for success after high school.                                                                     

Age Appropriate Transition Assessments Utah Spring 2017 Goals based upon age appropriate transition assessments related to training. Assessment to assess middle and high school students’ with mild to moderate.                                                                   

Utah’s Transition Action Guide for Students with Disabilities  A framework which resulted in The Utah Transition Action Guide. For youth, high school dropout recovery, and achievement of recognized postsecondary options. 

Postsecondary Education Programs for Students with Disabilities in High School … Jun 27, 2016 Aggies Elevated. More than 200 transition postsecondary programs in the U.S. for students with autism spectrum disorder.                                                                         

Career Pathways  Career Pathways show students a direct connection between doing well in high school and being able to transition smoothly to postsecondary opportunities or getting a good job when they graduate.                                                                                            

Transition Services and Activities Examples Transition services and activities must be contained within the transition IEP that align with … refine, and/or work towards achieving after exiting high school.                                                                               

Adult Education Transition Services Introduction Purpose Transition Adult Education Transition Services. Written 9.12.12  Effective 12.13.12. Introduction. Basic literacy, including high school completion, must be the starting point

https://thinkcollege.net/resource/utah-postsecondary-inclusion-project-strategic-plan Think College is a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. See what’s happening in UTAH!

Transition Resources Nationwide

http://www.madisonhouseautism.org/ – Addressing the needs of adults on the Autism Spectrum.

https://www.transitionta.org/ National Technical Assistance Center on Transition (NTACT). Summary of Research/Resources on the Assessment of Students with Disabilities Transitioning

Adult Education Transition Services Introduction Purpose Transition Adult Education Transition Services. Written 9.12.12  Effective 12.13.12. Introduction. Basic literacy, including high school completion, must be the starting point https://thinkcollege.net/resource/utah-postsecondary-inclusion-project-strategic-plan Think College is a national organization dedicated to developing, expanding, and improving inclusive higher education options for people with intellectual disability. See what’s happening in UTAH!

https://www2.ed.gov/about/offices/list/osers/transition/products/postsecondary-transition-guide-may-2017.pdf  Revised guide to Transition Services from OSERS 2018

http://www.youth-move.org/sites/youth-move.org/files/files/timeline_2012_F.pdf  A good TRANSITION TIMELINE for parents and schools. What to do and when to do it.  

www.communityinclusion.org  the Institute for Community Inclusion at site has a varied list of all their publications youth and young adults, ages 14-30, with serious mental health conditions to move into rewarding work lives. Great Transition tips!

www.DisabilityInfo.gov  One stop source, government info relevant to people with disabilities, their families, employers and service providers; contains info on civil rights, education, employment, housing, healthcare, technology and transportation.

www.ncset.org National Center on Secondary Education and Transition, E-News, publications, events, and more.

http://www.ntact.org  National Technical Assistance Center on Transition, a national Technical Assistance and Dissemination center funded by USDOE Office of Special Education Programs (OSEP) NTACT’s purpose is to assist states in building their capacity to support and improve transition planning, services, & outcomes for youth with disabilities. NEW Fact sheets: appropriate Transition assessments & student involvement.

https://www.dol.gov/odep/resources/NCWD.htm    National Collaborative on Workforce and Disability

www.youthhood.org  NCSET’s interactive Web-based curriculum for youth

www.transitioncoalition.org/  Transition Coalition at U of Kansas offers information, support, & linkages to professionals, family members, individuals w disabilities & others interested or involved in the transition from school to adult life.

http://www.nlts2.org/  National Longitudinal Transition Study-2 NLTS2 has recently updated the website and features a keyword search function to help access topics of interest in the many reports currently available on the site.

http://community.cec.sped.org/dcdt/home  Council for Exceptional Children – Division on Career Development and Transition

http://idea.ed.gov/  Building the Legacy of IDEA 2004 The Individuals with Disabilities Education Act

http://www.tslp.org/   Quick Book of Transition Assessments from the South Dakota Transition Services Liaison Project

www.ncwd-youth.info/ Career Planning Begins with Assessment, National Collaborative on Workforce & Disability for Youth

Films around Disabilities

https://iod.unh.edu/projects/inclusive-communities Filmmaker Dan Habib shares his projects in collaboration with University of New Hampshire Institute on Disability

Person Centered Planning

http://www.ncset.org/publications/viewdesc.asp?id=1431  Nichcy’s “Tools for Transition”.

http://www.ilr.cornell.edu/edi/pcp/  A Person Centered Planning Education site, an overview of the PCP process

www.inclusion.com  a site about all aspects of inclusion and the Person Centered Planning Process.

http://nda.ie/Good-practice/Guidelines/Guidelines-on-Person-Centered-Planning/Guidelines-on-Person-Centred-Planning-format-versions/2-What-is-Person-Centred-Planning-/  The origins of Person Centered Planning, Syracuse University

http://www.dds.ca.gov/ConsumerCorner/ThinkPlanDo.cfm  some interesting and very user friendly transition planning & self advocacy info on the consumer page of the California DDS website.

https://trn-store.com  Training Resource Network. Disability resources, workshops, training on full inclusion to purchase.

Postsecondary Options

https://www.heath.gwu.edu/helping-students-navigate-path-college-what-high-schools-can-do   Helping Students Navigate the Path to College: What High Schools Can Do. This new practice guide from The What Works Clearinghouse (WWC) recommends 5 specific steps that educators, administrators & policy makers can take plus research evidence that supports these recommendations.

www.ahead.org  the Association for Higher Education and Disability

http://www.postsecondaryresearch.org/ For students with intellectual disabilities considering college, a new website created by the Post-Secondary Education Research Center (PERC) project offers overviews and links to a number of programs.

www.thinkcollege.net a new site with information about living college life with a disability. Designed for teens w disabilities, video clips, activities, information, & additional resources to help students get a head start planning for college.

http://www.ncwd-youth.info/news_post/ncwdyouth-releases-info-brief-on-designing-professional-development-for-youth-workforce-development/   Prepared by NCWD/Youth and Workforce Strategy Center, this case study report. https://www.heath.gwu.edu/  HEATH Resource Center at the National Youth Transitions Center, Graduate School of Education and Human Development at George Washington University. Transition website list is extensive and updated regularly.

http://www.going-to-college.org / a site with info about living college life with a disability. It is designed for teens with disabilities, provides video clips, activities, information, & additional resources that can help students get a ready for college.

https://thinkcollege.net/resources/innovation-exchange/dual-enrollment Dual enrollment programs for students with ID are established on the campus of a college or university for students of transition age (usually 18-21) to provide the opportunity for these students to receive transition services in their IEP on a college campus with same-age peers instead of at the high school.

www.ets.org  Educational Testing Service, identify documentation necessary to take the college boards w accommodations.

https://www.collegeboard.org/students-with-disabilities  504, eligibility, accommodations, etc.

http://www.bazelon.org   The Bazelon Center for Mental Health Law is designed to inform students who want to seek help for mental illness or emotional disorders about their legal rights under the Americans with Disabilities Act and other laws.

www.ldonline.org LD Online: Resources for the Learning Disabled

http://seriweb.com SERI: Special Education Resources on the Internet

www.ed.gov/about/offices/list/ocr/transition.html  – “Students w Disabilities Preparing for Postsecondary Education”

https://www.wnyccda.org/  is comprised of a group of postsecondary and secondary education professionals, and community and government agency representatives working with students with disabilities. Legal rights and responsibilities, great charts and Transition planning resources.

http://www.washington.edu/doit/  Had been just about assistive technology, but now has lots of short papers for students, families, and educators on pithy issues, like what kind of experiences besides education students should have before coming to college, volunteer work, etc.

www.mappingyourfuture.org / a government sponsored website that assists in the typical process of going to college, good baseline info, map out your preferences, person centered planning.

Health and Transition

http://www.gottransition.org  Tons of info, resources. Highlights include: Webinars and Radio Shows

http://www.medicalhomeinfo.org/how/care_delivery/transitions  New Clinical Report: Supporting Health Care Transition from Adolescence to Adulthood in the Medical Home, “Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home”.

https://hscj.ufl.edu/jaxhats/docs/envisioning_my_future_gray.pdf  A young person’s guide to health care transition – University of Florida. This site is geared towards helping youth feel more comfortable talking to their healthcare provider.

http://www.communityinclusion.org/pdf/man8.pdf  for families& teens w special health care needs transitioning to adult life

Employment & Vocational Options

http://www.dol.gov/odep/topics/youth/softskills/  “Skills to Pay the Bills: Mastering Soft Skills for Workplace Success,” curric-ulum developed by ODEP focused on teaching “soft” or workforce readiness skills to youth, including youth with disabilities.

http://www.communityinclusion.org/article.php?article_id=211  Employment/Government Benefits (Updated ) ICI – Going to Work: A Guide to Social Security Benefits and Employment for Young People with Disabilities (2011 Edition)                         The 30-Day Placement Plan: A Road Map to Employment – An informational brief. Breaks down the job search process into a series of tasks that will lead to employment. The plan is driven by the job seeker, including the person’s personal and professional support networks.

http://www.ed.gov/about/offices/list/ovae/index.html  US Office of Adult and Vocational Education. The OVAE website has information, research, & resources to help prepare young people and adults for postsecondary education, successful careers, & productive lives

http://www.choosework.net/  Social Security Administration Launches “Choose Work”. A site for people receiving Social Security disability benefits. short, informative videos; hear powerful stories about Ticket and other Work Incentives; Work Incentive Seminar Event, find local resources & other helpful information for beneficiaries who want to work.

www.ncwd-youth.info   Navigating the Road to Work is the electronic newsletter of the National Collaborative on Workforce and Disability for Youth (NCWD/Youth)

www.worksupport.com Virginia Commonwealth University RRTC on Workplace Supports and Job Retention, supports that are most effective for assisting individuals with disabilities maintain employment and advance careers.

http://www.ncwd-youth.info/news_post/ncwd-youth-webinar-on-legal-landscape-for-preparing-youth-for-employment-now-available/ webinars for teachers on Transition and work

http://www.careeronestop.org/  Career OneStop: Pathways to Career Success – Online tools to help job seekers, students, businesses, and career professionals, including video clips of hundreds of occupations. U.S. Department of Labor.

www.ncwd-youth.info  National Collaborative on Workforce and Disability for Youth assists state and local workforce development systems to better serve youth with disabilities

http://ma.easterseals.com  Easter Seals offers School to Work Services, check it out.

http://www.ed.gov/about/offices/list/osers/index.html Office of Special Education & Rehabilitation Services

http://janweb.icdi.wva.edu Job Accommodation Network (JAN) job accommodations, ADA, & employability

Housing and Community

https://www.usa.gov/disability-financial-support Information on home ownership for people with disabilities, financing, ABLE etc

https://www.ilru.org/home Research, education & consultation in the areas of independent living, the ADA, home and community based services and health issues for people with disabilities.

Self Determination & Self Advocacy

http://www.ncset.org/publications/viewdesc.asp?id=962  Promoting Self-Determination in Youth with Disabilities: Tips for Families and Professionals

http://www.ngsd.org/  National gateway to self determination

www.self-determination.com  National Center on Self Determination

http://www.self-determination.org  Office on Self-Determination, has links to disability related info/resources

www.nyln.org  National Youth Leadership Network, promotes leadership development in the US.

http://www.travelinstruction.org  Association of Travel Instruction Web site. Site promotes transportation independence.

Estate Planning

https://www.specialneedsalliance.org/free-trustee-handbook/   “The Special Needs Trust Administration Manual: A Guide for Trustees” reference guide for anyone who is managing a special needs trust for a person with disabilities

https://www.realeconomicimpact.org/ National Center for ABLE account information.

Government Benefits

www.ssa.gov  The Red Book, a general reference source about employment-related provisions of Social Security Disability Insurance & Supplemental Security Income programs for educators, advocates, rehab professionals, and counselors serving people with disabilities.

http://www.ssa.gov/redbook/  A Guide to Work Incentives (April 2009) The Red Book serves as a general reference source about the employment-related provisions of Social Security Disability Insurance and the Supplemental Security Income Programs for educators, advocates, rehabilitation professionals, and counselors serving people with disabilities. Look for Best Benefits and online screening tool, assist w determining potential SSA eligibility

https://secure.ssa.gov/apps6z/iAppeals/ap001.jsp  Online appeal of Social Security disability claim decision.

http://www.ncset.org/publications/viewdesc.asp?id=938  “So You Have Decided to Apply” Tailored for parents of youth with disabilities, the brief details the step by step process of applying for Supplemental Security Income (SSI).

http://youth.eeoc.gov/index.html  The Equal Employment Opportunity Commission’s (EEOC) website for Youth, culturally responsive transition planning.

Learning Disability

www.ncld.org  National Center for Learning Disabilities; supporting individuals w LD to achieve their full potential.

www.ldam.or  L D Worldwide, non-profit, organization for individuals w LD, their families, & professionals.

http://www.allkindsofminds.org/  e-newsletter, great resources and help on learning differences. All Kinds of Minds supports teachers and provides opportunities to build their expertise in how students learn.

www.ldonline.org  A leading learning disabilities website for parents and professionals

www.schwablearning.org  a free and comprehensive website that offers reliable, research-based content to help parents

Siblings

http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=2488  Family Caregiver Alliance Fact Sheet: Caregiving with Your Siblings This fact sheet describes how to identify the family dynamics that can impact care-giving, ways siblings can help, how to increase your chances of getting that help, how to deal with emotions that arise. http://groups.yahoo.com/subscribe/SibNet SibNet Listserv, An Online Community for Adult Siblings The SibNet Listserv is an online community for adult siblings around the world to share information and discuss issues of common interest. You can now join the SibNet group via Facebook as well as Yahoo.com.

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